....I cannot believe that about a year ago, I was training for the London Marathon, again to try & raise awareness of this life-long "condition"....I'm not going to harp on about it, I'm sure that I've already done that throughout this blog at some point or another, but I will send my love, best wishes to families of loved ones, that have had a diagnosis, awaiting a diagnosis or are feeling so misunderstood...I've come through the other side, it's been tough & don't get me wrong, there are still days when I could pull my hair out & hang from the rafters (although I'm too short to reach!!) but, in any case thoughts are with all you wonderfully special, dedicated & devoted people out there xxxx
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